The Comeback Queen Is Home

Shannon is back home and recovering well. Shannon’s favorite sign is the OK sign, which she greeted me with the day before she was discharged from the hospital. She is in great spirits and trying to talk up a storm. We want to thank all of you for your prayers and encouragement during her recent hospitalization. We have a visiting nurse, who will be following her for a few weeks, that will do blood draws and labs for us. Things are getting back to normal, so I hope to resume my blogging and twittering; or maybe I’ll just twiddle my thumbs and listen to the birds sing outside my door.

Shannon’s other favorite sign is the I Love You sign. If you were here, I know she would be waving this sign to all of you for your love towards her.

Update on Shannon

Just spoke with the doctor. He says Shannon is improving, but will have to remain in the hospital of at least another 24 hours for IV antibiotics. Her sodium's are coming down, but her sugar is still somewhat high. Shannon apparently had both a skin infection on her arm and a urinary track infection. Your continued prayers are appreciated.

My Comeback Queen

Writing is a strange thing. Sometimes it is pure joy and other times it is pure torture. I seem to do my best writing in both of those states. It’s the blah times of life that writing seems most difficult for me. I cannot say that I have had writer’s block for the past few weeks, as I have hundreds of topics I would like to write about. It’s just in the blah times; I have no enthusiasm, and therefore figure anything I write will be dull to my reader as well.

Yesterday, my daughter, Shannon, was hospitalized for the 100^th plus time in the last 30 years. For those of you that don’t know about my daughter, let be briefly explain. Shannon was a normal healthy child until age eleven, when she was diagnosed with a brain tumor. Although she underwent an eleven-hour surgery, the surgeons were not able to remove the tumor. They therefore radiated 80% of her brain. This shrunk the tumor down, but over the years a side effect of the radiation has caused her to have nine strokes. Other side affects of the tumor and radiation where numerous diagnoses of diabetes insepitus (very rare), sugar diabetes, osteoporosis, high triglycerides, a condition called panhypopit-where the pituitary gland was knocked out and requires hormone replacement.

Over the years Shannon has broken many bones due to the osteoporosis including both hips. She is now full of arthritis, but seldom complains. She has been comatose for as long as 28 day on seven occasions. She has lost her speech four different times. Following a stroke about five years ago, she did not regain her speech. Two years ago she lost the sight in her right eye, and then in November 2008, she lost the sight in her left eye after her last stroke. She is now totally blind. Two months ago Shannon’s hips became too painful to walk on, so she has stopped walking. Because of the strokes effect on her swallowing, she is now fed with a g-tube in her stomach. We constantly fight the battle of keeping her sodium and sugars in balance.

Most people cannot believe that Shannon is forty years old, because she looks like she is about 14. She stopped growing at age eleven. Because she did not go through puberty, she still looks almost the same as she did thirty years ago. I call Shannon my “Comeback Queen”, because no matter how hopeless the doctors say her prognosis is, no matter how sick, no matter what she has to go through-She ALWAYS comes back.

For the last week Shannon had been slowly deteriorating in health. She often goes up and down. Sometimes she pulls out at home, and at other times, she needs to be hospitalized. It is in the times of not knowing that my blahs seem to set in the most. It is like treading water, where one neither goes forward or backwards, but one just stays in place, trying to keep ones head above water. When I left the hospital last night, I felt encouraged. I believe we are once again swimming forward, and Shannon is in her comeback mode. She once again is going to retain her “Comeback Queen” title.

The Wonder of Fireworks

“A man is a very small thing, and the night is very large and full of wonders.” Lord Dunsany

I am so glad America's earliest settlers brought their enthusiasm for fireworks to the United States. Fireworks and black ash were used to celebrate important events long before the American Revolutionary War. The very first celebration of Independence Day was in 1777, six years before Americans knew whether the new nation would survive the war; fireworks were a part of all festivities. This early fascination with their noise and color continues today.

My first recollections of fireworks where at a baseball field in my hometown of Yerington, Nevada. My mother had an old Dodge Station Wagon, which she backed into the field so us four kids could watch from the back of it. My two brothers with their fresh new crew cuts and matching short outfits, which my Aunt Jerry had made them, where so excited. They kept asking, “When is it going to get dark enough?” The anticipation of the show was unnerving them. As we waited for the Nevada sky to darken, we ate a picnic and swatted mosquitoes off our arms and legs. I hated mosquitoes; and so I was more anxious for the show to be over; so I could get away from these pesky bloodsuckers.

My town was made up of copper miners, farmers, and cattlemen. There was no shortage of pickup trucks with their .22 rifles in the back window gun racks, filled with families picnicking and anticipated the great event. We also had a Piute Indian reservation right in our town. The Indians sat on spread out blankets or on the few bleachers available. We were positioned so we could see not only the fireworks in the sky, but the men setting them off, which was a show in itself.

As the sky finally reached an acceptable point of darkness, I had bumps all over me; I could not stop scratching. I just knew that the mosquitoes had carried off a pint of my blood in their now fat little bellies. BAM, BOOM, SIZZLE, CRACK! I looked to the sky and saw the fireworks explode into a beautiful artwork. My mouth dropped open, and during the entire show I forgot all about the mosquitoes and the itch.

Wonder of wonders! One definition of wonder is rapt attention or astonishment at something awesomely mysterious or new to one's experience. I think that pretty well describes my experience that night.

Bill Withrow expresses better than I, how I feel about the wonder of fireworks. "I often use the word "joy" when describing fireworks. It is a considered word, deliberate in choice. Not just amusement, entertainment, astonishment, but joy. Our art makes us all into children again for a while. We become one in our experience for the moment; lost in the sound and color and light. We see large forces, stronger than we could ever be, yet beautiful in their effects. “

Long before I knew the Lord, I think I was fulfilling Edward Young’s quote, “Wonder is involuntary praise”; I just didn’t know how to express it. Later I learned that the Bible states, “The heavens declare the glory of God.” I am glad that every 4^th of July we shoot off brilliant fireworks, because as Lao Tzu said, “From wonder into wonder existence opens.” It is easy as we get older to fall into the rut of ‘same oh, same oh’. Nothing shakes me out of that blasé state like a fireworks show. It puts the wonder back in my life. At least once a year, wonder becomes the wow,wow, wow of my life.

What Great Dads!

"A good father is one of the most unsung, unpraised, unnoticed, and yet one of the most valuable assets in our society." 
-- Billy Graham

As I was looking over the family websites, with all their wonderful pictures, I could not help but think, “What great dads this Barnett family has!”  This is encouraging, because growing up; we did not have a father present.  My parents divorced when I was three, and my father died when I was thirteen. My brothers and I did not have a father figure to show us the way.  Father’s Day was not a holiday in our house.  As a matter of fact, I don’t think I even knew there was such a thing as Father’s Day until I got married and had my daughter, Shannon.

Great Dad, Dan Barnett

Despite this my brother, Dan, works had at being a good Dad. A proud father, Dan, gave all his sons the middle name of Danielson. His four children are all grown up now, but they spend a lot of time together even still. His daughter Jodi is an interior architect. His son Scott is an ex-Iraq Vet Marine, taking pre-med at the University Of Nevada. His son Patrick is currently in the Army. His son Jacob is a student at the University of Oregon. With all these college students, I bet Dan received many letters from college over the years similar to this:

Dear Dad,

$chool i$ really great. I am making lot$ of friend$ and $tudying very hard. With all my $tuff, I $imply can't think of anything I need, $o if you would like, you can ju$t $end me a card, a$ I would love to hear from you.

Love, 
Your $on


The Reply:(to the above)

Dear Son,

I kNOw that astroNOmy, ecoNOmics, and oceaNOgraphy are eNOugh to keep even an hoNOr student busy. Do NOt forget that the pursuit of kNOwledge is a NOble task, and you can never study eNOugh.

Dad

Of course Dan had a lot of help from his wife, Robin.  This letter from a daughter might rightfully explain it:

One evening a little girl and her parents were sitting around the table eating supper. The little girl said, "Daddy, you're the boss, aren't you?" Her Daddy smiled, pleased, and said yes. The little girl continued "That's because Mummy put you in charge, right?"

Below are some recent photos of Dan & his Family.

Happy Father’s Day, Dan.  I think you ARE a GREAT Dad!

Great Dad, Christopher Barnett

My nephew, Christopher’s father passed away when he was only seven years old.  He had a great dad, my brother Don.  Don’s grandmother raised him, after his mother’s death.  Don absolutely loved and adored his six children. It is hard to lose a father. Don understood that, and would not have wanted that for his children, but cancer won its battle. I admire how Christopher is fathering his own children, and I think his father would be very proud of him. Christopher recently graduated from Oxford with a doctor’s degree in Divinity.  Both Christopher and his dad, raised family’s while working their way towards their doctorates.  Don had a doctorate in Aeronautical Engineering.  Life father, like son.    Christopher has a wonderful wife, Stacy. They have three sons, Luke, Caleb, and Paul.  I have just recently reconnected with Don’s children, as thousands of miles and many years have separated us. I am so excited to see how well they are doing. Below are some pictures of Christopher’s Family:

  

 

After looking over the Stacy’s web site, full of their family pictures, this little cartoon seems to echo Christopher son’s concept of their dad.

Happy Father’s Day, Christopher.  I think you ARE a GREAT Dad!

Great Dad, Bert Newton

My niece, Joanna, is Christopher’s little sister. She was only three when her father passed away. She married this wonderful man, Bert Newton, and he is another great father. I was privileged to attend their wedding several years ago, but I do not know either of them very well.  However, after looking over their family web site, I can tell that Bert is a great father. Bert is a high school coach.  Joanna & Bert have two children, Reese and Owen.  Owen is named after my brother, Don, whose middle name was Owen.  Below are some pictures of the Newson family.

 

Happy Father’s Day, Bert.  I think you ARE a GREAT Dad!

Red Pop and Watermelon

Juneteenth, June 19

There is a common misconception among Americans that Abraham Lincoln freed the slaves with a stroke of his pen. Yet the Emancipation Proclamation, which went into effect on Jan. 1, 1863, did no such thing — or, at least, it didn't do a very good job of it. Two and a half years later, on June 19, 1865, Union soldiers sailed into Galveston, Texas, announced the end of the Civil War, and read aloud a general order freeing the quarter-million slaves residing in the state. It's likely that none of them had any idea that they had actually been freed more than two years before. It was truly a day of mass emancipation. It has become known as Juneteenth.

In recognizing the history of American freedom, advocates say, Juneteenth is as deserving of recognition as Independence Day. "We may have gotten there in different ways and at different times," says Meyers of blacks and whites, "but you can't really celebrate freedom in America by just going with the Fourth of July."

Abolitionist Frederick Douglass wrote "Juneteenth should be more important to Black people than the 4th of July because when the Declaration of Independence was signed, the words did not apply to Black people."

The other day a black friend came by while I was researching to write this post and asked what I was doing.  When I told her she asked, “Could you please tell me what Juneteenth is about?  Is it just about having a picnic?  She was serious and I was surprised. I just assumed that all black people knew what Juneteenth was about.  Later that night I did a search on Tweeter to see what people were saying about Juneteenth, and once again I was surprised to find about one in four black tweeters where asking what Juneteenth was about.  I felt sad because I agree with Frederick Douglass’ view that this holiday should be more important to black people than the Fourth of July.

Juneteenth celebrates the struggles of black Americans to free themselves from bondage, it celebrates and encourages self-development, respect for those ancestors who came before, and to acknowledge and never to forget their sufferings, for young people to never forget their roots, and to take pride in their place in this society, this country, this world, as well as to develop a respect for other people’s cultures.

Most Juneteenth celebrations include Juneteenth parades and festivals usually held in parks. The festivities and food of the early Juneteenths involved a range of activities that still continue to this day:

-Prayer services

-Guest speakers, which involve community elders who recount the past

-Singing and dancing
-Baseball
-Barbecue (meats such as chicken, pork and beef)
-Watermelon
 -And always the ever-ubiquitous strawberry-red soda (”Big Red” soda)

So all I can say to my friend is, Yes, Juneteenth is about more than having a picnic!  And yet, red pop and watermelon seem like refreshing ways to celebrate the day.  Just as freedom must have been refreshing after all those years of slavery. So have a picnic, drink your red pop, eat your watermelon and enjoy your freedom.

Do Not Despair, God Is Holding It All Together

Galatians 1:15He is the image of the invisible God, the firstborn over all creation. 16For by him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities; all things were created by him and for him. 17He is before all things, and in him all things hold together. 18And he is the head of the body, the church; he is the beginning and the firstborn from among the dead, so that in everything he might have the supremacy. 19For God was pleased to have all his fullness dwell in him, 20and through him to reconcile to himself all things, whether things on earth or things in heaven, by making peace through his blood, shed on the cross.

Last year I viewed this little video by Louie Giglio on Laminin.   I viewed it with my mouth wide open in wonderment.  This year has been a very trying year for me.  There were many days when it seemed that everything was falling apart.  It was at those times, I became mindful of this video and Galatians 1:17b, “in him all things hold together.”  I would like to share this video with you, hoping that when you go through rough times, it may also encourage you.  Be prepared to be amazed!